The 20 Best Fabry Disease Doctors Near Me in Grand Rapids, MI

Find the Top Fabry Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 68 doctor with experience in Fabry Disease near Grand Rapids, MI. Of these, 51 are Experienced and 17 are Advanced.

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68 providers found
    Experienced in Fabry Disease
    Cardiology | Transplant Surgery
    Experienced in Fabry Disease
    Cardiology | Transplant Surgery
    Referral may be required

    Corewell Health Cardiovascular Services - Bradford

    2900 Bradford Street Northeast, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    David Fermin is a Cardiologist and a Transplant Surgeon practicing medicine in Grand Rapids, Michigan. Dr. Fermin is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Heart Failure, Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Endoscopy. Dr. Fermin is board certified in American Board Of Internal Medicine. Dr. Fermin is currently accepting new patients.

    Advanced in Fabry Disease
    Internal Medicine
    Advanced in Fabry Disease
    Internal Medicine

    Corewell Health William Beaumont University Hospital - Internal Medicine

    3601 West 13 Mile Road, 
    Royal Oak, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lynda Misra is a primary care provider, practicing in Internal Medicine in Royal Oak, Michigan. Dr. Misra is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Postmenopausal Osteoporosis, Osteoporosis, Secondary Adrenal Insufficiency, and Addison's Disease. Dr. Misra is board certified in American Board Of Internal Medicine. Dr. Misra is currently accepting new patients.

    Advanced in Fabry Disease
    Internal Medicine
    Advanced in Fabry Disease
    Internal Medicine

    Office

    3230 Eagle Park Dr NE, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Juliana Grey is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Grey is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Crohn's Disease, Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, and Postmenopausal Osteoporosis. Dr. Grey is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Corewell Health Family Medicine - 8333 Felch St

    8333 Felch Street, 
    Zeeland, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Samantha Mcbee is a primary care provider, practicing in Family Medicine in Zeeland, Michigan. Dr. Mcbee is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Generalized Anxiety Disorder (GAD), Type 2 Diabetes (T2D), and Seasonal Affective Disorder (SAD). Dr. Mcbee is board certified in American Osteopathic Board Of Family Physicians. Dr. Mcbee is currently accepting new patients.

    Advanced in Fabry Disease
    Family Medicine | Cardiology
    Advanced in Fabry Disease
    Family Medicine | Cardiology

    Munson Healthcare Cadillac Primary Care

    7985 South Mackinaw Trail, 
    Cadillac, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Diener is a Cardiologist practicing medicine in Cadillac, Michigan. Dr. Diener is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hyperlipidemia Type 3. Dr. Diener is board certified in American Osteopathic Board Of Internal Medicine, Internal Medicine - 2016. Dr. Diener is currently accepting new patients.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Referral may be required

    U Of M Nephrology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    James Shayman is a Nephrologist practicing medicine in Ann Arbor, Michigan. Dr. Shayman is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Fabry Disease, Gaucher Disease, Gaucher Disease Type 3, and Polycystic Kidney Disease. Dr. Shayman is board certified in Internal Medicine and Nephrology. Dr. Shayman is currently accepting new patients.

    Advanced in Fabry Disease
    Pediatrics | Medical Genetics
    Advanced in Fabry Disease
    Pediatrics | Medical Genetics
    Referral may be required

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. Dr. Priestley is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics. Dr. Priestley is currently accepting new patients.

    Advanced in Fabry Disease
    Cardiology
    Advanced in Fabry Disease
    Cardiology
    Referral may be required

    Frankel Cardiovascular Center

    1425 E Ann St, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Farsi
    Accepting New Patients
    Offers Telehealth

    Sara Saberi is a Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Saberi is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Cardiac Ablation, and Pacemaker Implantation. Dr. Saberi is board certified in Cardiovascular Disease. Dr. Saberi is currently accepting new patients.

    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Pediatric Genetics Clinic

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Ames is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 116 other conditions, according to our data. Her clinical expertise encompasses Delayed Growth, Cardiomyopathic Lentiginosis, Cardiofaciocutaneous Syndrome, and Noonan Syndrome. Dr. Ames is board certified in Pediatrics, Medical Biochemical Genetics, and Clinical Genetics & Genomics. Dr. Ames is currently accepting new patients.

    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 6 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Urdu
    Accepting New Patients

    Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Ahmad is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Von Gierke Disease, and Tyrosinemia Type 3. Dr. Ahmad is board certified in Clinical Biochemical Genetics and Clinical Genetics & Genomics. Dr. Ahmad is currently accepting new patients.

    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Quinonez is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 130 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Maple Syrup Urine Disease. Dr. Quinonez is board certified in Pediatrics, American Board Of Pediatrics, Pediatrics - 2011, Clinical Biochemical Genetics, American Board Of Medical Genetics And Genomics, Medical Biochemical Genetics - 2015 , American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2024 , and Clinical Genetics & Genomics. Dr. Quinonez is currently accepting new patients.

    Advanced in Fabry Disease
    Neurology | Medical Genetics
    Advanced in Fabry Disease
    Neurology | Medical Genetics
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Fink is a Neurologist and a Medical Genetics provider practicing medicine in Ann Arbor, Michigan. Dr. Fink is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, Primary Lateral Sclerosis, and CACH Syndrome. Dr. Fink is board certified in Neurology and Clinical Genetics. Dr. Fink is currently accepting new patients.

    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Pediatric Otolaryngology Clinic

    1540 E Hospital Dr, Floor 2 Reception A, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kristen Lee is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 139 other conditions, according to our data. Her clinical expertise encompasses Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome. Dr. Lee is board certified in Pediatrics, Medical Biochemical Genetics, and Clinical Genetics & Genomics. Dr. Lee is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Bronson Primary Care Partners-Texas Corners

    8088 Vineyard Pkwy, 
    Kalamazoo, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Timothy Gatz is a primary care provider, practicing in Family Medicine in Kalamazoo, Michigan. Dr. Gatz is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Maturity Onset Diabetes of the Young. Dr. Gatz is currently accepting new patients.

    Experienced in Fabry Disease
    Internal Medicine
    Experienced in Fabry Disease
    Internal Medicine

    Beaumont Children's Hospital

    3601 W 13 Mile Rd, 
    Royal Oak, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Todd Wilkinson is a primary care provider, practicing in Internal Medicine in Royal Oak, Michigan. Dr. Wilkinson is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Postmenopausal Osteoporosis, Osteoporosis, Addison's Disease, and Secondary Adrenal Insufficiency. Dr. Wilkinson is currently accepting new patients.

    Experienced in Fabry Disease
    Family Medicine
    Experienced in Fabry Disease
    Family Medicine

    Cameron Werner, MD

    440 Woodward Ave Ste 101, 
    Iron Mountain, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Cameron Werner is a primary care provider, practicing in Family Medicine in Iron Mountain, Michigan. Dr. Werner is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Generalized Anxiety Disorder (GAD), High Cholesterol, Familial Combined Hyperlipidemia, and Xanthoma. Dr. Werner is currently accepting new patients.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Referral may be required

    Baxter Wholistic Health Clinic

    935 Baxter Street Southeast, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    James Visser is a Nephrologist practicing medicine in Grand Rapids, Michigan. Dr. Visser is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Visser is board certified in American Board Of Internal Medicine. Dr. Visser is currently accepting new patients.

    Advanced in Fabry Disease
    Advanced in Fabry Disease
    Referral may be required

    Office

    4677 Towne Centre Rd Ste 303, 
    Saginaw, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Claudia Zacharek is a Nephrologist practicing medicine in Saginaw, Michigan. Dr. Zacharek is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Acute Kidney Failure, Chronic Kidney Disease, End-Stage Renal Disease (ESRD), and Nephrosclerosis. Dr. Zacharek is currently accepting new patients.

    Advanced in Fabry Disease
    Internal Medicine
    Advanced in Fabry Disease
    Internal Medicine
    3901 Beaubien St, 
    Detroit, MI 
    Languages Spoken:
    English
    Accepting New Patients

    David Stockton is a primary care provider, practicing in Internal Medicine in Detroit, Michigan. Dr. Stockton is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Danon Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. Dr. Stockton is currently accepting new patients.

    Advanced in Fabry Disease
    Pediatrics | Medical Genetics
    Advanced in Fabry Disease
    Pediatrics | Medical Genetics
    Referral may be required
    3950 Beaubien Boulevard, 
    Detroit, MI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Esperanza Font-Montgomery is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Detroit, Michigan. Dr. Font-Montgomery is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Maple Syrup Urine Disease, Pompe Disease, Danon Disease, and Phenylketonuria (PKU). Dr. Font-Montgomery is currently accepting new patients.

    Showing 1-20 of 68

    Last Updated: 09/26/2026

    What is the definition of Fabry Disease?

    Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

    When should I see a Fabry Disease doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fabry Disease doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fabry Disease doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fabry Disease doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fabry Disease doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

    Why is it important to get a second opinion from a different Fabry Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fabry Disease doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fabry Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fabry Disease doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fabry Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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