The 20 Best Fabry Disease Doctors Near Me in Grand Rapids, MI

Find the Top Fabry Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 10 doctor with experience in Fabry Disease near Grand Rapids, MI. Of these, 7 are Experienced and 3 are Advanced.

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10 providers found
    Jessica R. Priestley
    Advanced in Fabry Disease
    Pediatrics | Medical Genetics
    Advanced in Fabry Disease
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency.

    Steven Deroos
    Experienced in Fabry Disease
    Pediatric Neurology
    Experienced in Fabry Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

    Advanced in Fabry Disease
    Advanced in Fabry Disease

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    James Visser is a Nephrologist in Grand Rapids, Michigan. Dr. Visser has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Visser is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Fabry Disease
    Experienced in Fabry Disease

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Bonita Mohamed is a Nephrologist in Grand Rapids, Michigan. Dr. Mohamed has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and Necrosis. Dr. Mohamed is currently accepting new patients.

    Experienced in Fabry Disease
    Experienced in Fabry Disease

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Delyria is a Nephrologist in Grand Rapids, Michigan. Dr. Delyria has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Acute Kidney Failure, Chronic Kidney Disease, and Acute Tubular Necrosis. Dr. Delyria is currently accepting new patients.

    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    Advanced in Fabry Disease
    Medical Genetics | Pediatrics
    35 Michigan St NE Ste 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stacie Adams is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactose Epimerase Deficiency. Dr. Adams is currently accepting new patients.

    David R. Fermin
    Experienced in Fabry Disease
    Cardiology | Transplant Surgery
    Experienced in Fabry Disease
    Cardiology | Transplant Surgery

    Corewell Health Heart Optimization And Evaluation Center - Bradford

    2902 Bradford Street Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients

    David Fermin is a Cardiologist and a Transplant Surgeon in Grand Rapids, Michigan. Dr. Fermin has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Cardiomyopathy, Heart Failure, Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Endoscopy. Dr. Fermin is currently accepting new patients.

    Experienced in Fabry Disease
    Pediatric Nephrology
    Experienced in Fabry Disease
    Pediatric Nephrology

    Helen Devos Children's Hospital Nephrology-Grand Rapids

    35 Michigan St NE Ste 5201, 
    Grand Rapids, MI 
     (0.3 miles away)
    Languages Spoken:
    English

    Yi Cai is a Pediatric Nephrologist in Grand Rapids, Michigan. Dr. Cai is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Nephrotic Syndrome, Feingold Syndrome, Calciphylaxis, and Nephrocalcinosis.

    Experienced in Fabry Disease
    Neurology
    Experienced in Fabry Disease
    Neurology

    Office

    275 Michigan St NE Fl 11, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Juan Ortiz is a Neurologist in Grand Rapids, Michigan. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. His top areas of expertise are Drug Induced Dyskinesia, Pyruvate Carboxylase Deficiency, Seizures, and Dysarthria.

    Experienced in Fabry Disease
    Neurology
    Experienced in Fabry Disease
    Neurology

    Trinity Health Medical Group Alzheimer's & Memory Clinic-Grand Rapids Campus

    220 Cherry St SE, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Min Zhu is a Neurologist in Grand Rapids, Michigan. Dr. Zhu is rated as an Experienced provider by MediFind in the treatment of Fabry Disease. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 2C, Limb-Girdle Muscular Dystrophy Type 1A, and Dystrophinopathy.

    Showing 1-10 of 10

    Last Updated: 04/28/2026

    What is the definition of Fabry Disease?

    Fabry disease is an inherited disorder that results from the buildup of a type of fat, called globotriaosylceramide, in the body's cells. Beginning in childhood, this buildup causes signs and symptoms that affect many parts of the body. Characteristic features of Fabry disease include episodes of pain, particularly in the hands and feet (acroparesthesias); clusters of small, dark red spots on the skin called angiokeratomas; a decreased ability to sweat (hypohidrosis); cloudiness or streaks in the front part of the eye (corneal opacity or corneal verticillata); problems with the gastrointestinal system; ringing in the ears (tinnitus); and hearing loss. Additional signs and symptoms are possible, which can vary among affected individuals.

    When should I see a Fabry Disease doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fabry Disease doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fabry Disease doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fabry Disease doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fabry Disease doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fabry Disease doctor search results page. 

    Why is it important to get a second opinion from a different Fabry Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fabry Disease doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fabry Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fabry Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fabry Disease doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Fabry Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fabry Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Fabry Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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